Arlene is on the SCENE

Another Successful Year Spreading CMT Awareness

Posted on: July 12, 2013

tiche.1Forty-six schools, eight states, 6600 students. The third year of the Hereditary Neuropathy Foundation’s School Outreach Program was our best yet! From our home state of Rhode Island, to our current homes in New York and Washington, DC, and on out to Chicago and Dallas, we met our goal of reaching more students, teachers and parents than ever.

Our school presentations deepen understanding of disability as difference, something that can be embraced rather than merely tolerated or accepted. With our sequel, Arlene, the Rebel Queen, we added the powerful message that every young person has the potential to change the world. In fact, perhaps the young are best suited to lead us to change! With the addition of our Team CMT Kids program, we provide the opportunity for students to join with us in our mission to one day cure Charcot-Marie-Tooth (CMT). Be sure to check out our new video of highlights from this year’s presentation.

Having presented at almost 100 schools since first writing Arlene on the Scene, educators are beginning to spread the word on the classroom potential for the Arlene series. We’ve received positive reviews from the School Library Journal, our Teacher’s Guide for Arlene On the Scene has been revised, and many schools have taken advantage of discounted class sets. Both books will also be assessed this summer for their reading levels.

We believe that awareness is an integral part of HNF’s mission to support those living with CMT. We have found that our children’s books and accompanying school presentations have resulted in increased understanding and support for our friends and family members living with CMT, as well as all of those we know who live with all kinds of disabilities and differences. That would include just about all of us!

We look forward to next year, increasing our reach even further. Don’t forget to contact us if you’re interested in a free school presentation in your area.

Thank you letters–

thanl-you-letter-(1)  thank-you-letter-(2)

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3 Responses to "Another Successful Year Spreading CMT Awareness"

It was so nice to see your update on your travels. We corresponded this past winter about the possibility of you coming to the Northbridge (MA) Public schools where our grandson will be in kindergarten this year. Glad to hear that you have reached this large number of people and that in the next year or two that you might be in our area again.

Thank you.

Cynthia Blain

We are hoping to be up in RI/MA again next year and would love to work on coming to Northbridge! It is always a challenge to keep travel costs low, but when we can schedule several schools in one geographic area, it makes things much more efficient. We will be in touch as the school year approaches!

Awesome! We will add to newsletter. Thank you, A

Allison T. Moore Founder/CEO http://www.hnf-cure.org http://www.help4cmt.com 212.722.8396 917.648.6971

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