Arlene is on the SCENE

Listen to the Voices

Posted on: April 2, 2011

We were incredibly moved by the voices of those living with Charcot-Marie-Tooth disease, as recorded by the New York Times Health Section.  We need to continue to raise our voices until everyone knows what CMT is, everyone understands the urgency, and we all join together to maximize the quality of life for people living with CMT.

Matthew Downing puts an orthopedic brace on the foot of his son Matthew, 5. Both have Charcot-Marie-Tooth, a progressive neurodegenerative disorder.

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